Nate & Jon

 

Daddy, Nate & US Senate Candidate Roy Blunt



Nate came home from the hospital on Tuesday and it has been a busy week since he got home due to frequent medications and breathing treatments.  Nate had some problems with a steroid that the doctor had prescribed at the hospital, but our pediatrician took him off that medication and he has been continuing to improve.  He had really good days yesterday and today.  Yesterday we had family pictures taken at the pumpkin patch at Manning Farm and Nate loved being outside with his Oxygen off.  In fact, Nate fought us about his Oxygen the rest of the evening. 

Then today was Nate's 2nd birthday! We took him to a meet and greet for Roy Blunt (running for US Senate) and Billy Long (running for US Congress). Then we took Nate (dressed as a frog) and all his brothers and sisters to a couple Trunk or Treats this evening.  We got  home and we were ready to do presents and cake, BUT Nate fell asleep!  So cake and presents will have to wait until tomorrow!  Right now Nate is curled up with daddy, asleep on my side of the bed and breathing so easy, which is such a relief after being so congested and sick.


Jon the giraffe


On Thursday, Jon had his final procedure and x-ray contrast study on his stomach.  He did very well during this last step which was painful.  So far he has needed some pain meds at night when we start the overnight continuous feeding, but during the day he has not had any pain.  He started hurting when we were taking pictures yesterday so I don't think there will be many pictures of Jon, except in group pictures that were taken before he started hurting.  Tonight most of the swelling was gone, and Jon (dressed as a giraffe) loved going Trunk or Treating AND LOVED eating his candy when we got home!